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Monday, September 28, 2009

Little updates....are better than NO updates...I suppose...right??!!

  • We finally got the forth IV in at about 1:45 am .....Thank you NICU nurses...Thank You GOD!!!
  • Avery was up on and on during the night
  • Very spacey/lethargic ALL morning
  • Not really very interactive today as he has been the last couple of days
  • WE tried the coughilator(sp?) with respiratory therapy this morning---a machine that helps produce a good cough ;to help him get those secretions up with out LOTS of suctioning,not sure yet if think it will be effective for him
  • Respiratory wise....doing allot retracting/pulling(basically struggling)working hard at breathing.....Repository rate has been more consistently higher today
  • Sounds more junky today,and had chest PT and suctioning....and still sounds yucky
  • Labs that were drawn during the course of trying to place an IV yesterday/today at 2:00 am....showed that one of his levels(CO2) was really low,but could be caused from one of his medications(but this is really low for him)
  • We will be starting a new medication to offset that low level and also get more lab values tomorrow
  • A Team meeting was supposed(still may ;not sure)to happen tomorrow;but now it is thought to wait on some of these tests to come back,before meeting....I also hope that when ever this meeting happens it will include ALL the important team players....
  • Working to aggressively increase feeds today,even though he will probably not respond well to this,the reasoning behind it; is that he needs to be at least up to full volume prior to the test tomorrow,or they may reschedule it for the end of the week and that will set everything else back...UGH....
  • We have switched temporarily to a blow by o2(it looks like a big shovel mask and is not necessarily attached to his face it sits on his chest ) ,also due to this test coming up tomorrow,they would rather not have the nasal cannula(o2 nostril tubing)
  • We are waiting to go down for a test.....hopefully it will give helpful information
  • I am waiting to see if Avery's neurologistt gets back to me today or SOON.....
  • Avery's coloring is very pale today.....hummmm....not real sure why,but I have mentioned these changes ...for documentation Purposes OF COURSE....
  • Surgery came in this morning ,but I was not particularly coherent AT 5:00 AM AFTER BEING UP UNTIL 2:30 AM...So I imagine they will be back later...although it's not like they have anything to say to me,because we are waiting for Avery's test to be done along with the results....
ON some side notes:

I will be doing school work with the kids here at the hospital in the evenings and YES they have things they will be doing STILL at home during the day;although ONE on ONE teaching is needed in some areas ....since we are not sure of the length of this stay,I need to do this ...so prayers that we can accomplish what needs to be accomplished would be great!!!


"Wherever God's finger points,HIS hand will clear the way" .....
a quote from my daily devotional


1 comment:

  1. Dear Avery and Family,
    Although I have not been able to see you over the past few months you have never been far from my thoughts and prayers. Rachael shared your blog with me today and I am sorry to hear that times have been so difficult for Avery. I will continue to keep you in my prayers and I hope to see you soon.

    Cheryl Gallant
    South Bay Early Intervention

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