I guess that question could be taken and answered in so many different ways...
Time in the hospital seems so slow at times....but before you know it ...you have started yet another week or another month...
Time when it comes to relationships....they all have a starting point.... and in time they grow and are nurtured...NO matter what kind of relationship they may be...working,family,spouses,friends,doctors,nurses,staff,God....(Not in that order of course)
Time when you look at your kids....it seems like just yesterday they were doing things for the first time ,like crawling,smiling,talking,reading,playing ball,taking a bus...ect ect...and NOW their teaching you a few things or two....or 10!!!!!!
Matthew--19:14 Jesus said, "Let the little children come to me, and do not hinder them, for the kingdom of heaven belongs to such as these."
Time when you have somewhere to be or something to do...we are all hard pressed for time and always seem to need more of it so we can fill it with more things and stuff to do with that time.....we are never satisfied with what we often have...until we no longer have it....is that true for time as well?!?....I would think possibly yes...you can decide for yourself!
I could go on and on......We all may look at time in our lives differently....BUT there is ONE thing for sure...TIME DOES not stand still ......it goes by...weather we want it to or not....What will you do with YOUR TIME!?!?!
These days I apparently have a lot of it(Time),but so little at the same time....however I have been able to reflect on many things ...one being time....
When it comes to God there is no such thing as times....because things are done perfectly in HIS timing in HIS way..he does not think about months end or a new weeks start....he is not hard pressed to get things done on a deadline or be somewhere at any specific time.....he doesn't get in the way of relationships....he wants to have a relationship with us.....he isn't hard pressed for time ,and doesn't make excuses....HE is the Almighty God, who is there at all times.....we just need to take ....."TIME "to know that....
An Avery Summery of some recent "Times"------Today is Nov 10th,2009
- Avery has been in the ICU for 19 days.......a long 19 days I might add....During this time......Time certainly has not stood still, there have been moments (times--- I hoped they would)...
- Avery was extubeateded the day after surgery on the 23rd of Oct,however he continued to have a hard time with his breathing....
- At one point he was actually moved to his regular floor,but that lasted all of 4-5 hours and he was sent right back to the ICU.
- Upon returning to the ICU Avery had been on a BI-Pap or C-Pap machine----a form of ventilation without intubeateing him.....this was to help him to not work so hard at breathing;it helped to a degree ,but he was still working hard;this went on for 10-12 days; he had a hard time weaning off this machine.
- During this time he has been on antibiotics to treat a couple of infections in his lungs....neither of which would have caused the excessive work he had been doing with his breathing . Avery has been getting nutrition through his Port Catheter that has given him TPN--Total Parenteral Nutrition and Fat Lipids
- Last week he received a blood transfusion....(Thank you ALL blood donors).Saturday night he has started on G-tube feeds for the first time since his Fundo was done...
- A decision had been made to have a tracheotomy placed----which took place Friday Nov 6,2009;due to his new baseline of increased work of breathing
- Regarding Avery's seizures--- up until the last few days prior to surgery (11/6)had been better.....but Saturday he had almost 400, and needed extra medication more than once,seizures continue to be ab issue,but meds are being ONCE again adjusted.
- Saturday he came OFF the VENT...and we pray it will stay that way...he is getting O2 blown in his trach...we increased the O2 this afternoon again (11/10)
- Since Saturday night and increasing Sunday;Avery has had a really tough time ...regarding his saturation's and showing signs of excessive pain...he has de-satted more than a 30 times just yesterday to the 60-70's(not good)and even to the 50's
and has been screaming in pain, what stinks is we can't hear his voice yet(due to the trach)..he also was turning a little coloring we'd rather not see while de-satting ..... - Pain management is being addressed.......
- I think his feeds have attributed to some of his pain;but I think he is just is allot of pain from all these procedures .....we are taking it one day at a time....or I should I say minute by minute....
- His work of breathing is increased again ...even with the trach ....
- He has had to be suctioned many times throughout the day & nights...
- Prior to having surgery again last Friday Avery had been more interactive and responsive than he had been after his first surgery(10/23) ...For that we are very Thankful to God!!! We are praying we see more of this interaction & responses in the coming days!!!!
"Trust in HIM at all Times, O people pour out your hearts to him, for God is our refuge"
Time for ....Some side NOTES-----
- The kids were glad to see their brother ...whenever they come in:)
We got special permission for our kids to see Avery....For that we are also Thankful to God for that TIME together as a family!
- Please PRAY FOR our KIDS....As this admission has been really hard on them...I think it's hard for ALL of them on their own level to really process and understand all that is happening....it can be a bit overwhelming for US as parents...imagine being a kid!
- Please pray for my mom....she is not feeling well;apparently it is just a cold but I think it is taking it's toll,and she feels bad that she can't help out with the kids while being sick...She has been a huge help and I appreciate all she does!
- Please pray for my brother Kevin who has been having some medical issues
- Please pray for Joe & I ....as this life style of; hospital living..... is hard on both of us in different ways!
- Please pray for my friend Kayleigh ,who will be having major surgery in the coming month or so....Pray for her Doctors & family as well!
- Giving Thanks to God for all the prayers received,loving support,Family & Friends....along with help with our kids, & house hold stuff...meals have been also appreciated..... Thank you for giving of yourself and your TIME~!
Below are not the most recent pictures......
Devynn and her baby bro....
Avery receives a blood transfusion
Thank you GOD......for the blood donors!!!
Avery's mask.....
The tape was to protect his skin from that mask....
you can get real bad skin break down because of the forced pressure!!
My little Pilgrim boy.....who is not so happy.....but he is a strong Pilgrim boy!
Blood donations can always be made at your local Red Cross....be a donor today..there's no better Time!!!!
Big blue eyes.......he really hated that mask towards the end of time that he had to wear it!!
This and the other masks are for his Bi-pap...C-Pap vent he was on for almost 2 weeks time!!!
Strange eyes.......this is after his first surgery 10/23
Sleepy .....medicated.....
Big Bro
Big bro
Big Sis
All three big siblings....
And NO ...not Big mama.....Mom and her TY guy
Love the teddy
My man and my Boss......
My four miracles
My big Boys....who are practically men.....and we ask??????
Wasn't it just just yesterday Andrew was born...NO in fact he's almost 19yrs....Wasn't it just yesterday that Tyler was just starting to talk in the cutest little cartoon voice..NO...he will be 15 next month..WOW...
Wasn't it just yesterday that Devynn was talking with her friend Zac about their imaginary dog named Batovin...NO....That was like 7-8 years ago ..cause she will be double digits in a few weeks!!!
And wasn't it just yesterday that I told you all I was pregnant with OUR 4th child .....NO...Cause Avery will be 17 months old this month.....
Didn't I just bring Joe home to meet my mom and dad...NO that was over 20 years ago....and WE are going strong...Thanks TO GOD!!!!
As I update this post.... I sit and am reminded that tomorrow 11/11/2009 is the 17th anniversary of the death of my dad.....It seems like just yesterday in so many ways....but soooo long ago ALL at the same time!!!
I am so Thankful to God for the 20 years time I had with my dad...all the good all the bad.....the happy the sad.....God is good all the time!!!
SO...Where does the TIME go and what can we do to value,appreciate & enjoy each moment of that TIME??
I am so proud of my Kids that God gave me :)
I am truly Blessed with family, friends...and the TIME that God continues to give me each day to appreciate all things!~!!
So I ask you .....TIME....Can it stand still and go by so fast????
What do you think God would ask of you in the time you are here on Earth??
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