The last couple of days Joe and I have had a little bit of time alone without the kids;so we could do some talking.........I think we are both looking forward to the BIG meeting today..
Or rather ...We are more wanting the information given and questions answered!
I have my list of questions/concerns and am ready to roll TODAY....the meeting is in the afternoon....SO if you could just keep us in your prayers today.......For guidance,wisdom and for GODS Understanding through it ALL!!
As an FYI---Joe and I will likely not be posting much in regards to decisions until we have processed all the information and have decided on what it is GOD really would have us do...After some decisions are decided on; we NEED to have some conversation with our OTHER kids....
Whatever it is that GOD would have us do will affect OUR whole family.....Prayers for our kids is always greatly appreciated!
- New medication has been started for his seizures;and we are NOW doing research on the Keto diet,in hopes to be able to start that in the near future
- Apparently there are a rare few people that can not metabolize Depakote and Avery happens to be one of them (surprise surprise)...
- With that be said we are weaning off Depakote...
- Avery remains pretty sedated at times,I think due to medication and seizure activity
- He has been irritable/unconformable...with bouts of crying---not real sure of the cause; I have seen more bouts of crying at night(it seems like after his new med has been given)
- Recent news----he has been having blood in his stool...NOT sure at this time what the reason is for that.....
That's ALL I got for now....thanks again:)
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