Devie loves her little Bro:)...Can you feel the Love!!!???
Grandma holds Avery .....and gets some smiles!!
Avery on St.Patrick's day ....sporting his shirt Kathy got him!!
Loves the fingers if he can get them in his mouth....often needs help keeping them there!!


~April /May~2010---

* What a blessing to be able to go to Devynn's show(in April) of "Mary Poppin's"
Although it was a challenge bringing Avery .....It was such a blessing:)

* Tyler went to the State House this month for an Awesome program --called Teen Pact...he had to get all dressed up and learned about how Bills get passed and many other aspects of politics along with what his role should be as a citizen ...he had a great experience!

* Andrew was able to hold Avery(he hasn't done that in probably a year)

* Avery had another infection ....lots of Respiratory issues
Many phones calls to the Doc....he was on 3 antibiotics and another medication
Never really found the source of infection, he did have a Resp infection, but not sure that would be what would cause a fever for 6 days

* Avery's pain is always an ongoing issue, which I work to address with the team regularly ...nobody seems to know what to do at this point, there are many days it is awful to see his pain

* Avery has been treated now also for Asthma and Allergies

* It has been nice to have some visitors; as it can get lonely----I really appreciate the fellowship and encouragement

* We had a very scary experience with Avery after his infection this last time....
Due to Avery having a Resp infection...I needed to change the Trach( so NO water bugs would attach to the Trach after the course of antibiotics .....this is not an uncommon thing to do!
However----it didn't go so well....the Trach wouldn't g o in ...wouldn't go in...I tried the smaller one that wouldn't go in either...
Thankfully my nurse was able to pop the old one back in ....(the one we just took out)
We then bagged him (as he was BLUE/ GREY)...

Anyway----I was then able to get a new Trach in ,but this was an experience I hope to never have again...Thanking God for getting us this!

Lots going on....As the usual...but appreciative to God for ALL the many Blessings:)


Noni and her boy...she was SO happy to hold him!!!


On a Side Note----
"We are finally getting the application completed for "Extreme Home Makeovers"